FAS GUESTBOOK ARCHIVES 2003


Notes posted to FAS-CRC Guestbook in 2003:


Tue Jan 07 16:14:46 2003 from
Kim Blentlinger <kimblentlinger@hotmail.com
From: Marcellus
Relationship: parent
Child: 6 1/2 years.
 

I'm a step-parent that has full custody of a FAS,RAD,ADHA boy this has been the most difficult time in my life!!!!!!I see a future for these children and it doesn't look good.


Sun Jan 12 01:56:01 2003 from
Christine <bcnorth@telusplanet.net
From: Alberta
Relationship: Professional
Child: 8 present
 

Thank you for the excellent site. As a social worker I find the information invaluable in helping clients understand the needs of a child with FAS / FAE / ADHD


Fri Jan 17 01:56:01 2003 from
cheryl townsend <townsendcheryl@msn.com
From: everett, wa
Relationship: parent
Child: 16 1/2 yrs FAE
 

VERY MUCH ENJOYING THE SITE AND KNOW I WILL BE A VISITER OFTEN.


Wed Feb 12 19:33:21 2003 from 160.seattle-21-22rs.wa.dial-access.att.net
darla d current <ddcurrent@att.net
From: wa
Relationship: parent
Child: 5, 12
 

love the website!


Thu Feb 20 16:22:34 2003 from
Loretta

WOW - Congrats - this is an excellent resource site!!


Wed Mar 5 19:52:26 2003 from dialup-65.58.55.228.dial1.kansascity1.level3.net
Fred Callies <fcallies@earthlink.net
From: Ok, USA
Relationship: Parent
Child: 8, FAS, CP
 

Thank you for your wonderful website. I have already sent your address to many of my friends, family and professionals so that they can get a better understanding of the needs of FAS children. Thanks again, Fred


Fri Mar 14 19:37:51 2003 from cf1-akl.morenet.net.nz
S.Te Mangai Smity <susansmith72@hot mail.com
From: New Zealand
Relationship: nursing student
Child: N/A
 

A really good site, easy to get info and surf on 4 ages has really helped me with lots of aspects and my understanding. Thanks.


Thu Mar 20 14:04:12 2003 from alb-24-29-75-90.nycap.rr.com
Brittany De John <britbrt@nycap.rr.com
From: ny
Relationship: student
Child: ?? i'm 12
 

hi i think that this is a great web site! :) i am doing a report on people with FAS. This site has helped me a lot. I hope that you all have a great life and a good journey. Thank You, Brittany


Sun Mar 30 16:17:57 2003 from pmodin2-221.rconnect.com
Jacqueline Leopold <jackieleopold@hotmail.com
From: Minnesota
Relationship: student
 

I'm doing a paper on the effects of FAS on child. You're web page has been very helpful in finding information. Thank You.


Mon Mar 31 07:45:21 2003 from external47-253.cps.k12.il.us
Patrice Worthy From: Illinois
Relationship: student
 

I would just like to tell each and every family member that I am sorry for your loss. I will keep you in my prayers


Mon Mar 31 18:54:05 2003 from
Velma King <vrknsh@yahoo.com
From: New Mexico
Relationship: Professional
 

I'm interested in the training conferences.


Mon Apr 7 23:18:59 2003 from modem22.tc-quad.allidaho.com
Jolene Swift <swift@allidaho.com
From: Idaho--USA
Relationship: Parent
Child: 12, not yet diagnosed
 

I came to this site looking for help. My daughter is 12 and constantly in alot of trouble!! She is spending time in a Juvenile Detention Center right now. She is constantly lying, stealing, and has very angry outbursts. She was diagnosed with OCD, and Bi-polar. After visiting this site, I think we are all missing the big picture in her. I didn't even know there was such a thing as FAS/E. She has no physical appearances. But, I can relate to the neuro-symptoms. Sounds just like her in every aspect. I really need help!!!!!!


Wed Apr 9 04:16:47 2003 from 210-55-45-87.dialup.xtra.co.nz
Chris <krisdelys@hotmail.com
From: New Zealand
Relationship: 3rd Yr Student Teacher
Child: -
 

I would like to express my thanks to the people who take FASD serious and make others aware of what is happening to our children and the unfair affects on them. Shirley Winikeri from the Fetal Alcohol Support Trust is doing a wonderful job working volunteering here life to being an advocate for children and families who have to deal with FASD in their lives. I have recently presented a brief seminar on Fetal Alcohol to my fellow classmates and the word is definately spreading! wonderful.


Fri Apr 11 10:59:21 2003 from u247n184.eastlink.ca
vicky <vickymorinville@hotmail.ocm
From: ns, canada
Relationship: birth, adoptive and foster paretn
Child: 2, fas
 

Our little girl was diagnosed yesterday with FAS. As we have suspected this for awhile, I have been looking for information and your website is the best I've found. Thanks for providing information with a positive outlook.


Sun Apr 13 09:02:08 2003 from cache-ntc-ac11.proxy.aol.com
Annie Packingham <Wrytegirl3@aol.com
From: Las Vegas NV
Relationship: Mommy
Child: 10 and 12 FAS and other
 

Theresa, I was checking the sight as I often due before a speaking engagement and saw the "This is Scary" I was moved to tears. What a powerful impact. I am speaking to the New Residents at UNLV monday evening and that will be my first Handout. I admire you and cherish you so much. You have a way of slapping the world in the face. love ya


Wed Apr 16 20:51:19 2003 from
dawncook From: mi
Relationship: student
 

Found great info for a research paper


Wed Apr 23 02:44:35 2003 from
melinda la porte <metrla@yahoo.ca
From: b.c.-canada
Relationship: parent of 2 boys
Child: 2yrs/ 6 month old no diagnosis yet
 

i am fae and also the mother of 2 boys. I drank and abused drugs throughout both of my pregnancies. I have to live with the guilt every day of my life but am glad to find your website in order to find more info on what I can do to help my boys now. thank you for being there.


Wed Apr 23 14:05:18 2003 from
Jessenia <sweetmami_87@yahoo.com
Relationship: student
Child: --
 

Hi, I am doing a report on children with FAS. I found this website, and I thought that it was pretty good. I read many articles about families who have lost their child because of FAS. I also read poems that mothers have written for their child. It touched me so profoundly, that I even started crying. I feel very sorry for these families and I wish them a happy life, and my heart goes out to all of them. Love, Jessenia


Tue May 6 04:09:53 2003 from
Vivian Botka <msruup2@mchsi.com
From: Illinois
Relationship: parent
Child: 19/severe fas
 

Theresa, Awesomeeeee... I love your site. Thank you for having it avaliable to me and always updated. You are a beautiful person for the work and time u have put into this site. Kristys Mom


Wed May 7 06:58:33 2003 from
Kayla Lefever From: Pa, 17740, Lycoming
Relationship: student
 

i think that this is very important that you are trying to get the word out on FAE and you are doing a great job keep up the good work.


Sat May 10 12:38:07 2003 from
Hentgen Vivi <fasaelu@yahoo.de
From: Luxembourg
Relationship: Parent and student
Child: 13 no
 

Hello Teresa thank you for your help . We are at the begin from Fas Europe ,together we are stronger. Vivi


Tue May 13 17:50:25 2003 from
trace hayter <tracehayter@fsmail.net
From: united kingdom
Relationship: parent
Child: 18 arnd (my diagnosis)
 

I drank frequently and heavily during the first 5 months of my pregnancy. From day 1 I knew something was wrong. FAS had only just been heard of in the uk at that time - I was vaguely aware of it because I was a student nurse at the time.After 17 years of absolute turmoil and at times absolute hell, I finally had my worst fears confirmed when I visited FAS sites. It's still not widely recognised over here so accessing help and support and UNDERSTANDING has been a nightmare and even now, everyone says, "but you don't know for certain that it was the alcohol that has caused chris's problems." They say it to make me feel better, but I KNOW what I did when I was pregnant and I KNOW that Chris's problems are not to do with my failure to discipline him. All my family say he must leave, for the sanity of the rest of us, but he spent 2 years in foster care when he was 14 because we could no longer cope with him and I let him come back home 15 months ago because at 16, social services had made him go to live independently and he clearly wasn't coping. They never picked up that he had problems even though I kept telling them about my concerns.Things have been really bad again lately, and pressure is on from husband and family to kick Chris out.It seems I'm the only one who really understands his problems -everyone else is so ready to say it's because Chris has never had to learn the consequences of his actions etc etc which simply isn't true - he just doesn't learn, fullstop.He just carries on making the same mistakes, time after time. So where DO I get help? I love my son and I know there's a high chance he'll not be able to live independently. He is a vulnerable adult and despite the ignorance of those who say that I am unable to help Chris, and that I let him stay here through guilt,I believe that by continuing to love him, even in the most awful of times, during the violence, aggression, abuse, I am still helping him more than by turning him out onto the street. There IS nowhere for these children to go and yet what do I do when Chris's presence here is dividing my family, causing huge rifts between my husband and me and depressing my 12 year old daughter? It seems there are no answers. Thankyou for this site and for the opportunity to offload!!!


Tue May 13 22:06:14 2003 from
Misha Porter <mporter@sasktel.net
From: Saskatchewan
Relationship: Professional
 

Hi I recently attended the FASD conference in Saskatoon and it was great !! Nice to see more and more people becoming interested in the prevention of FASD! PS Great web site for information I'll be sure to pass the site on! Misha Porter Womens Counsellor Battleford Family Health Centre North Battleford


Wed May 14 17:57:59 2003 from
Mary Clark Relationship: Parent and Professional
Child: FAS 10 yrs. / FAE 8 yrs.
 

Great Site. Thanks alot


Sun May 18 02:58:04 2003 from
Marietjie Grobbaar <fasfacts@metroweb.co.za
From: South Africa
Relationship: NGO - FASfacts - focus on PREVENTION of FAS - South Africa highest prevalence rate in the world
 

NOTHING, YES, NOTHING has prepared us for this mindboggling site!!! South Africa, especially the Western Cape, have the highest prevalence rate of FAS in the world. PREASE - WE NEED THERESA KELLERMANs E-MAIL ADRESS!! COULD YOU PLEASE SEND IT URGENTLY TO US. Kind regards Marietjie Grobbelaar FASfacts


Mon May 19 19:28:02 2003 from
Jacki From: New Zealand
Relationship: student
 

What a great page, full of information. I built the website for the Fetal Alcohol Support Trust in Waikato, New Zealand. I've only touched on parts but have a link to your wonderful website from ours. Keep up the good work!


Wed May 21 21:44:24 2003 from
anonymous <jca.clark@verizon.net
From: Florida
Relationship: parent
Child: 29 mo. FAS
 

This has been an informative sight. i kept my name out because i am yet only a guardian for this child and am hoping to adopt her soon..i have been agressive using EI but i would like some info on how to get the most i can medically for this precious little girl...she was in foster care for 6 months and neither the parents nor the social worker new anything was wrong (however she has the "typical" appearance)...ANY advice would be appreciated..please email me


Wed May 28 14:26:24 2003 from
Joy McGinty From: IL
Relationship: Student
 

Thank you for the wonderful resources on FAS. I am a grad student pursuing an MAT in Special Education and learned a lot from the wealth of material you've put on your website. Thanks again, Joy


Tue Jun 3 19:17:42 2003 from
Meagan Kay From: Canada
Relationship: student
 

I am a student in grade 9, and this year for my science class, my friend and I were to do a seminar on 1 of a number of topics. We chose FAS. All i knew about it was that it was caused by drinking alcohol during pregnancy. As i started researching, I came across this site. The stories of so many people that were affected with FASD, saddened me. I believe we should try to be more aware of the consequences of our actions and i hope that someday, FASD will be defeated. Thank you for all the useful information and helping me be more aware of this disorder.


Tue Jun 10 22:32:42 2003 from
carolyn fenton <cdd2540@hotmail.com
From: Washington
Relationship: Parent
Child: 6 years Fas/adhd/siezure disorder
 

this is a nice site and the stories are wonderful.


Fri Jun 13 15:52:00 2003 from
Jacqueline Pickett <Moxiemaniacs@aol.com
From: CT, USA
Relationship: Parent
Child: 18--FAE (FASD)
 

This website is the most comprehensive source of info on FASD--it's been invaluable in helping me along the rocky road of parenting a child with FASD. Keep up the great work & a million thank-yous!


Tue Jun 17 23:50:20 2003 from
Amanda From: Australia
Relationship: Professional
 

i found your website very fascinating. i had only recently discovered what FAS is all about, my heart goes out to all those who are suffering, you will forever remain in my heart! Keep up the great work guys! Mandy


Wed Jun 25 23:20:49 2003 from
Lucy From: CANADA
Relationship: Student/Professional
 

It is wonderful to see so many resources all in one place. :-) I come across so many people who believe that "a little won't hurt". They use the example that the "Europeans" drink, and they don't have an FAS problem, so a little doesn't hurt... or North Americans are just being "scaremongered" into complete abstinence to avoid lawsuits etc...or, there is "no proof" that a "little" is really going to cause a problem. Or, they say "I drank" and MY child is fine, so don't worry. They seem to beleive that only if you have an addiction problem is there a reason for concern!! Please tell them it isn't so!


Tue Jul 1 05:56:57 2003 from
Janet Warakomski <JennyJanetsBug@swbell.net
From: Missouri, USA
Relationship: Parent & Sped Teach
Child: 17 FAS/E
 

We adopted our son at 3 1/2 months. He was born 1 month early. The adoption agency said that his birth mother's drinking "would not cause any problems" because she only drank a beer a day. When I called them years later, they admitted that she kept changing her story about her alcohol use. The neurolgist diagnosed Chris with FAS/E at age 6. Chris has ADHD, OCD, Bi-Polar, Motor Disturbance, Growth Hormone Deficiency and now Scoliosis. We are dealing with all kinds of behavior problems at home, school and his assisted job. I hope to find someone to "chat" with, who has a child about my son's age.


Sat Jul 12 17:18:44 2003 from
Michael McLarney <papasiu@surewest.net
From: California
Relationship: Parent
Child: 7 FASD
 

We adopted Michael Paul as an infant with no idea how hard it would be to get him all the help he needed. They told us he would never walk or talk, but last year he mainstreamed in kindergarten. We know the progression from special ed classes to special ed mainstream isn't a sign that he will ever be able to live on his own, but we rejoice that he is the best Michael Paul he can be. The solutions are found in doctors who care and know what they are doing, schools who don't care but will follow the law and the support of friends, family and church to get through it all. Please read this poem about my son. He is one of seven. The others are not FASD. They are all children damaged before or after birth who found refuge in our hearts. Michael Paul He came to us a gift disguised as a broken toy. Skin hung from him that didn't fit this blessed little boy. Don't take him home. He'll never walk or talk or sit. But this was the child God gave to us. He was the perfect fit. Yesterday he strolled across the room to lean against my side. I asked him what he wanted and his eyes lit bright and wide. "God sent me to give you some love." And then he walked away. I've entertained angels unawares and one chose to stay. This child is more than they said he could be, His spirit it stirred by God's grace. Everything he does and all he says to me Constantly turns me to God's face. And so as I kneel on hard wooden floor Elbow resting on the bottom stairs, I thank God for this wonderful child Both a source for and an answer to prayers. Michael E. McLarney


Sun Jul 20 18:41:36 2003 from
Cheri Taylor <schoolgirl3@insightbb.com
From: Indiana-United States
Relationship: Adult Student
 

I think that this is a wonderful site that you have set-up! It has a lot of information and is educational. Please keep up the wonderful job because there are a lot of people who need this site.


Mon Jul 21 18:55:06 2003 from
kim Blentlinger <kimblentlinger@hotmail.com
From: michigan
Relationship: step -parent
Child: 7yrs.FAE/ADHD/RAD
 

Dear Teresa, This site is so wonderful. I share it with my step-sons teachers and use it myself for peace of mind , if there is any!!!! I continue to reveiw it over and over. I do find one problem. His parents refuse to read this info to educate themselves on their sons disabilities. I 'm still working on them. Thanks Kim


Sun Jul 27 09:07:59 2003 from
Edie Trimmer <edieann@ix.netcom.com
From: Utah
Relationship: Parent
Child: 18
 

I have an 18 year old son in serious trouble with the law. I suspect he may be FAE but don't know how to help since he's not been diagnosed and the legal system in Utah is not at all educated or interested in this issue.


Sun Jul 27 12:31:34 2003 from
Dolores McKenzie <mckenziedc@earthlink.net
From: OR
Relationship: professional
 

I am employed with a Native American community in Oregon. I have had numerous trainings about FAS and also have a personal interest. Educating the community is now part of my employment duties and I am wanting to get reconnected with all resources available.


Thu Jul 31 20:45:32 2003 from
Diana A.S.A. Hannah <I don't havee one
From: Washington
Relationship: Adult 34yrs. old
 

Hi, I am trying to get the information that the U. of W. Fetal Alcohol and Drug unit need so they can test me for Ffeetal alcohol Effects but I don't know a doctor who does the I.Q. testing and neurological tests they need. If you know one my mailing address is 17171 Bothell Way N.E. PMB 284 Lake Forest Park, WA 98155-5534


Mon Aug 11 12:32:30 2003 from
Kathy Wynne <kaimie01@msn.com
From: Mississippi
Relationship: Teacher
Child: 14 static encephalopahy
 

Thanks for your site.


Fri Aug 15 18:13:30 2003 from
Lyn Flink <lynflink@optusnet.com.au
From: South Australia, Australia
Relationship: Parent, of 8
Child: 14 fas 11 fas 7 fas 7 fas 5 fas nearly 5 developmental delay and behaviour due to mums abuse, 3 fas 2 not diag but hopefully one day
 

Very comphrensive page have printed to pass onto teachers etc. Have been working with fas children in my home for the last 11 years, and I am always after new info. Thanknyou


Wed Aug 20 14:35:12 2003 from
steve boyer <stboyer@batchewana.ca
From: ontario,canada
Relationship: professional
 

excellent site but also, could you direct me to other sites that offer info as well. trying to get as much info as i can because all 7 first nations within our tribal council are doing an information blitz culminating up to fasday. its a 9 day blitz, each reserve is putting a sacred item into a bundle that we are establishing for the purpose if fas/e awareness. so far I've taken all brochures that are printable from this site but for some reason i seem to think that there is more to be located. thank you very much steve boyer batchewana first nation addiction case worker


Sun Aug 24 11:40:35 2003 from
ROBERT BENNETT <rbennett@firstcity.net
From: ST.JOHN'S NEWFOUNDLAND
Relationship: GRANDPARENT
Child: 11-FAS
 

VERY INTERSTING SITE.HELPED ME ALOT.


Mon Sep 1 01:07:30 2003 from
Empire of Nick  <hermelin@gmx.net
From: Empire of Nick
Relationship: Empire of Nick
Child: Empire of Nick
 

You created a great Page! Check out mine too! http://www.nyk.ch


Thu Sep 4 15:44:03 2003 from
Jennifer <www.angel_eyez_1974@canada.com
From: Prince Albert, Saskatchewan, Canada
Relationship: Foster Mother
Child: 10 months old/ FAS
 

Thank-you for the Information that I read, Thats a lot of information to get, and it will help my foster daughter and my family learn together. Keep up the terrific work Thanks Jennifer


Sat Sep 13 16:13:09 2003 from
Sharon Friess <mkfriess@imagewireless.ca
From: Saskatchewan, Canada
Relationship: Parent
Child: 13, 12,10,9,8,6,5 FASD
 

I am so glad I found the links and information here. As a guardian I am always looking for more helpful information and an understanding listner.


Tue Sep 16 14:54:11 2003 from
sid davis <sid
From: rochester new york
Relationship: professional
 

I am employed as a Medicaid Service Coordinator with the DDSO. I work within the ten county region of the rochester area with the developmentally disabled community.


Thu Sep 18 05:27:59 2003 from
Os <os@riverstreet.org.uk
From: Bristol UK
Relationship: professional/parent
Child: 8 no diagnosis.
 

Great site, excellent resource. I just stumbled across it looking for other community resources. I had no idea that FAS had such prevelance. The positive images and stories are fantastic, Good luck to everyone. Os River Street Peer Support Service UK Bristol


Sat Sep 27 09:59:19 2003 from
ASaba Owerri <homeboy_owerri_asaba@aba.us
From: Miami Florida United States
Relationship: Banker
Child: 8yrs
 

I love your web site.


Sun Sep 28 21:36:23 2003 from
Catherine M. Tetreault <popeyegal@aol.com
From: Georgia, USA
Relationship: Step-Parent
Child: 1989 age 6 FAS
 

My step-daughter is now 20 years old, married (soon divorced) and has a 9 month old baby. She was recently diagnosed as Bi-Polar at Kirtland AFB, NM, where her husband is stationed. She is now in Georgia with me and her Dad and her baby is in Niceville, FL with his (husbands parents). I have been trying now for a week to get her seen somewhere here in Atlanta and since the Marcus Institute is only for children I am at a loss.She is on meds for bi-polar and I am worried that it is not the correct meds. I really need some help here. Can anyone help me and this 20 year old adult child. Thank you in advance.


Tue Sep 30 10:59:02 2003 from
Rick Stimpel <rickstimpel@hotmail.com
From: MN, USA
Relationship: Parent, prof & individual w/ mild FASD
Child: 10 adopted kids 6 -16
 

Can't get birth history on Adopted kids, so all Dr.s or psych evals will state is that all findings are consistant w/ an individual w/ FASD. They refuse to give Dx -- we can only get some of the needed sevices. Frustrating position to be in. I work for an Indian Tribe that has a program for kids w/ FASD but have a hard time getting parents to have their kids involved because of stigma to FASD. Looking for suggestions. Good resources list. Thanks!


Thu Oct 2 01:02:48 2003 from
Keld Stürup <keldsturup@mail.tele.dk
From: Denmark
Relationship: foster parent
Child: 9 - FAS
 

We are struggling to change the school environment. It is great to get ideas from your site. Thanks


Wed Oct 8 01:19:17 2003 from
I need a job to take care my Spastic Child <James A.P
From: #161, Joel Villa, Malayampadi (po), Kelakam (via), Kannur (dt) Kerala, India-670674. e-mail: jamesapk@yahoo.com
Relationship: MA Sociology, Computer operator, Medical transcription Trainer, Ready for any job: Clerical, manual, looking after the sick, aged, or children
Child: 4 1/2
 

My child had a premature birth, child was normal and healthy. But due to Doctors negligence and their failure to diagnose jaudice child have severe brain damage. I quit from my job in taking care of the child. Now what I earn here is not sufficient to look after him, as he has multipple disabilities. So I request you to give me any job throgh which I could take care of my child and few more of the similar cases. Please hear my appeal.


Tue Oct 21 16:28:16 2003 from
Deborah Euler-Ajayi <dea5508@yahoo.com
From: Arizona
Relationship: lawyer
Child: n/a
 

Thank you for the thoughtful article written about Leonard Gregg, the man accused of setting the 2002 Arizona wild fires. Leonard's FAS or FAE issues have been a real struggle, and few people understand the impact it has on emotional and intellectual functioning and control. I am his lawyer, and on Leonard's behalf I thank you for the kind words.


Sat Oct 25 23:24:58 2003 from
Marianne Ferrer <marianneferrer@earthlink.net
From: Texas/US
Relationship: student
 

I am a student learning a lot. What is being done by the doctors who have the best opportunity to intervene.? All the posters and t-shirts in the world won't do what he might be able to do which is at least confront in some sort of way. What are they learning about possible intervention at their level and what is their code of ethics regarding that unborn child? What is his responsibility legally or does that fall under malpractice? Don't they care? I have a very good friend with two children with FAS and no one said anything to her. Couldn't they test urine for it? And then talk to mom? If someone can help me understand this please e-mail me. I am in recovery, but thankfully did not drink while I was pregnant. I have three daughters.
 


Sun Oct 26 23:27:32 2003 from
 

This is an interesting website. However, I am the parent of a learning disabled, short-statured child and everyone assumes that I drank and did drugs when I was pregnant!!! When I tell the neurologists, pediatricians, teachers, etc. that I didn't they just look at me and say "uh huh". My sister-in-law drank and smoked while she was pregnant and her 3 children are perfectly normal! Her oldest is in the gifted program, she is a beautiful child and has won numerous academic and athletic awards. When her cousin was pregnant she smoked and drank all the time and they joked that "G-------- was going to have the retardedest baby you ever saw". Well, the cousin had a perfectly normal, handsome, tall, smart, athletic child. So, there's a lot of misinformation out there. You can drink and still have a perfectly normal, healthy baby. You can abstain completely and have a disabled child.


Thu Oct 30 18:21:20 2003 from
Elizabeth Case <dancase@frontiernet.net
From: New York State
Relationship: Parent
Child: Non-FAS/FAE
 

Your website should be required reading for anybody contemplating an adoption from Eastern Europe. Thank you for an excellent, caring and understanding resource. http://www.bewareofbbas.org


Mon Nov 3 20:31:45 2003 from
Anne <anne_breen56@hotmail.com
From: australia
Relationship: student
 

Dear People, I found your site by accident. I am a student researching birth defects/consanguinity. I am humbled by the faith and strength of parents and children coping with fas.


Wed Nov 5 08:29:31 2003 from
Becky Connell <rconnell7@cox.net
From: Virginia
Relationship: Grand parent
Child: 13 - non-categorial
 

My grandson is perfectly described here and I thank you for such a complete resource center! Even though he doesn't have the specific label, I know now beyond a shadow of a doubt that FAS is his real problem! Thanks for the wealth of info!


Wed Nov 5 10:58:56 2003 from
Kay <bogus7@qwickconnect.net
From: Tulsa
Relationship: Parent
Child: 12-no diagnosis I suspect
 

I came to this website to get information on FAS/FAE. I suspect that my step-daughter has FAS. Her birth pictures are not normal. She was swollen around her nose and eyes. Her eyes were very small. Now she struggles very hard to do the simplest things. She gets distracted very easily. She has already been held back in Kindergarten she can not be held back in school again (she is to old to be held back). She is not making it in school and I have tried everything that I can think of to help her. Now that I have found this site, I will be using some information that I have found here. Thank you.


Sun Nov 9 17:25:41 2003 from
Jerry Ann Robinson <jrobin5959@aol.com
From: Texas
Relationship: Professional (retired)
 

Great site! I've been asked to come back to work for the Texas Office for Prevention of Developmental Disabilities as a consultant to do FASD Presentations/workshops. I needed updating pretty badly. This site helped me find material I can use to update my presentation. Thank you and keep up the good work. jar


Wed Nov 12 09:54:09 2003 from
Richard G. Burns, J.D. <dickb@dickb.com
From: Kihei, Maui, Hawaii
Relationship: Professional
 

Much is being made of "faith based" treatment of alcoholism, but the smell of money attracts those who frequently want funding for "treatment" instead of dissemination of information about what God can do. My thirteen years of research and 22 published titles on the history of early A.A.'s spiritual roots and successes, as well as its documented cures, warrants presentation to your viewers. Respectfully, Richard G. Burns, J.D., http://www.dickb.com/index.shtml Member, American Historical Assn., AMERSA, Alcohol and Temperance History Group, CAPS, Phi Beta Kappa


Wed Nov 12 17:39:45 2003 from
Devin  <soccerchick257@hotmail.com
From: usa
Relationship: student
Child: NA
 

hey this really helped me on my project for life management! thanks alot for haveing such a resorceful site! to bad i couldnt find more pictures though it must really be hard for the kids with it..


Thu Nov 13 14:18:04 2003 from
Tami Kent <renowed@netzero.net
From: Las Vegas, Nevada
Relationship: Parent
Child: Stace 7-FASD, IED, LD, Behavior Issues & Lily 5- FASD, BiPolar
 

I am always searching for information and help in raising our youngest kids, and keeping the family together. I ALWAYS come back to this resource and want to thank you for having this information available to anyone searching for a tiny piece of this FASD, Mental Illness, Family puzzle.


Tue Nov 18 08:51:06 2003 from
MUGU  <MGBADAMUGU.COM
From: AYO
Relationship: MOTHER
Child: SAMUEL
 

Each person's story helps every other person who reads it. We learn from each other that we are not crazy, we are not bad parents, and we are not alone in this struggle to help our children find success. Thanks to each one of you for taking the time to share with us.


Tue Nov 18 10:49:09 2003 from
tiffani <pooh99919@cs.com
From: Las Vegas, NV
Relationship: student
Child: n/a
 

I am writing to find out if anyone knows if there are any resources here in the Las Vegas area for those children with FAS (I am doing a project in which I am trying to put together a resource notebook for parents of children with FAS in this area)


Sat Nov 29 08:52:08 2003 from
Traci LeVay <tracilevay@yahoo.com
From: Montana
Relationship: student/friend
 

Excellent site! I am currently working in an adolescent aftercare treatment center and most of the staff are uneducated about FAS/FAE and need to be. I will definately pass on the information. Thanks for the site! I will be back!!!


Thu Dec 4 21:02:56 2003 from
Adam ledingham <Adam.Ledingham@calgaryhealthregion.ca
From: Calgary alberta canada
Relationship: parent
Child: 5
 

Hi there my daughter is 5 year old with FAE, i'am her adopted father and came involved 2 years ago, what i have read on your web site i found it informative and alot of i relate to my daughter, i feel i can learn alot from this. Awsome site i enjoyed reading it.


Wed Dec 10 10:04:09 2003 from
DONNA CUBIT <DONNA.CUBIT@MAIL.IHS.GOV
From: CA.
Relationship: SUBSTANCE ABUSE COUNSELOR
 

I AM LOOKING FOR INFORMATION TO USE IN A GROUP SETTING. DO YOU HAVE A 4-16 WEEK COURSE OF MATERIAL TO EDUCATE MY CLIENTS? IM LOOKING FOR WORK BOOKS AND OR HAND OUTS, FILMS,ETC. THANKS FOR YOUR HELP DONNA PHONE # 661-327-4030


Wed Dec 10 11:15:52 2003 from
Roseanne & Adam & Ashely <roseadam@telus.net
From: Calgary Alberta Canada
Relationship: Parent
Child: Daughter 5 1/2 ARND ADHD BEHAVIORL

Hello, myself and my husband found your site very help full, we visit almost every day to read more about FASD. My husband is just learning about the FASD because he just come into our daughters live when she was 3 1/2 years old Now he has adopt our daughter and he wants to assist and help our daughter the best way he can. Keep up the good work.


Fri Dec 19 23:22:31 2003 from
David Carter <carter0461@netzero.com
From:  Oregon
Relationship: none
Child:  now 50
 

I too have FAS, I leanse about 4 year ago? now I know way I am so different. the time in school, the people that tease me? thankyou for Listem. Have a Marry Christmas.


FAS Community Resource Center